Monday, January 9, 2012

Some Useful Information

I have stumbled upon a couple of Facebook groups I would like to tell you all about. The first is for parents with kids who have Cerebral Palsy and currently has 2564 members. I imagine that it offers a wealth of support and information for parents who are raising kids with CP. You can ask to join at http://www.facebook.com/groups/CerebralPalsyInfo/#!/groups/CerebralPalsyInfo/.

The second group I'd like to mention to you all is called Mito Wish Upon a Star and is centered around kids with Mitochondrial Disease. It's not exactly a support group but is more like Special Gifts for Special Needs. Sponsors send gifts of all kinds (including gift cards) to kiddos/families of children affected by Mitochondrial Disease. You can ask to join the group if you are a Mito parent or want to become a sponsor. They are currently accepting volunteers to send birthday cards to the children and their siblings each month. You can ask to join at http://www.facebook.com/groups/mitowishuponastar/.

A lot of you reading this are probably already members, but if you aren't and you are a parent/care giver of a special needs child, you can also join one or more of the following groups:

2. Kids with Vents Facebook Group @ http://www.facebook.com/groups/kidswithvents/
4. Loving A Miracle - Special Parents Supporting Each Other @ http://www.facebook.com/groups/lovingamiracleismoving/
5. Trach mommies, Trach babies & Trach buddies! @ http://www.facebook.com/groups/alltrachs/

These are all groups that I am a part of (with the exception of the CP group) and enjoy participating in. I hope you all find some support in them as well.

No comments:

Post a Comment